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Pain My Story


 

 

 

 

 

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This is my story of PAIN and Much More.

 

 

The BEST way I can describe this pain is:

Several KNIVES inside my lower abdomen/stomach, cutting and poking from the inside; then, the BURNING ~  All this lasts for the entire day and night - began July, 2008 - Still Here.


 

I have been in horrific pain, my stomach, lower abdomen, 24/7 since July, 2008.  My husband and I have been to every doctor possible to find out exactly "WHERE My Pain Is Coming From."  We've seen at least 40 doctors, counting _several trips to the emergency room, mainly because I did not have a family doctor whom I could see and/or depend on.

(See "And They Call Themselves Doctors")

 

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This pain is like trying to explain to someone who's never had a "Headache, Or "Cut," just what it's painfully like.

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I was diagnosed with Lung Cancer, September, 2007.  My main treatment to kill the cancer was "Radiation."  Thank God that the Treatments worked, but, they fried my Esophagus along with other problems which I'll be addressing.

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So, I began having terrible pains in my lower stomach.  Each time I saw a new doctor, he/she couldn't give me a reason for this pain?  They just brushed me off, said to go home, and it would go away.  The pain began getting worse with each passing day, week and month, until it was SO bad that I was debilitated; only able to "lie down on my sofa."  I had No LIFE anymore.  

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I've always been a very active person.  Walking all of the time around our neighborhood for exercise, and jumping into my car to go to various places.  My husband and I would also go out to dinner several times a week with our friends.  I had a life-style of just being active!  I had lost so much weight during my treatments, that it also weakened me.  But, when I received the first "All Clear of Cancer News, back on January 29th, 2008, I was of course relieved and Thrilled!"  I was ready to resume my life as I knew it before the Cancer treatments.

 

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After a while, my husband made an appointment with a Pain Doctor.  At first, I was against this.  However, upon my initial visit, he evaluated me, and put me on a Pain Medicine called Neurontin, in addition to Vicodin.  I have NEVER liked taking any pain medicines, or, any pills either.  However, at the point I was at, I desperately needed pain medicines to help with my pain.

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The First Pain Doctor did not work out at all.  He was completely unprofessional, insulting, uncaring and we had enough.  I only found my current Pain Doctor, who I will be leaving Unfortunately After I had surgeries with this man whom I've found to be inept, along with his Surgery for ME:  The placement of the Battery Pack and Wires/Leads attached to the back of my head.  I am having SO much pain from the back of my head, and chest where the battery pack/stim is located.  Next Step:  Find a Qualified Surgeon to remove all of this.  I do NOT want to go back to the so-called Pain Doctor who did this surgery, I just don't like or trust him.  My body is most likely 'rejecting,' all that's been surgically implanted; I've been feeling "Sick,"  but not the traditional sick - a different sick, and I'm Cold from the inside out, in addition to night sweats?

 

(See: "My Story")

 

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We Found another "Qualified M.D. Pain Doctor."  I guess they say "Three is the Charm?  Let's hope so!  He could NOT understand WHY the procedure was placed in my chest, and NOT in my stomach where the pain is coming from?  This makes sense to me!  I'm gong ahead with this Doctor, a REAL doctor who'll listen, and will take phone calls from _his patients, something Dr.T. never did nor believed in.  Unfortunately, I fell for his tactics, and should've listened to our Insurance Company when they DENIED him, or the surgery he wanted to perform.  He is NOT recognized with the surgery I have.  But, I was so desperate to get out of pain, that I fought my husband, who ended up paying for my surgeries out of pocket.  This 3rd. Pain Doctor, wants to give me the Trial; placed in my stomach, "Internal/Outer stomach walls," to see if that works and kills the pain.  If it does, we go ahead with the permanent Surgery where the battery will be located somewhere in my lower abdomen which makes MORE sense and attacks the PAIN at the Source!!!!  God, I pray so!  The Trial will only be for 7 days instead of 3 weeks as the 2nd. so-called Pain Doctor insisted on.  

I can only hope and Pray very hard that this new procedure will work for me; I can't take this pain much longer, and that's the God's honest truth!

 

(Backing Up A Bit):

At my very first visit to Dr. T, I had the fastest exam?  He asked but a few questions, then said "You Have Permanent Nerve Damage."  Yes, the worst kind of pain ever.  In his opinion, my pain/nerve damage was caused by the result of the Radiation/Chemo treatments.  He gave us 2 choice:  To be on pain meds for the rest of my life; or, to have the Neurostimulation.

 

Occipital Stimulator Electrode Placement

(I Had 4 Surgeries: Trial; Removal Of Trial; Permanent Stim; Replacement Of TOO Large Battery In My Chest)


 

I had the aforementioned procedure done April 15th, 2009.  I wore  the Trial, with attached electrodes surgically inserted into the back of my head/brain; with lead wires attached to an external battery/program pack.   Permanent Surgery  July 21, 2009.

NOW I understand why his procedure was denied!  It is not recognized by the AMA or the Insurance Company.  After all I've been through, with it NOT working, pain coming from the back of my head, and in my chest where the battery pack is, I can fully understand WHY it's been denied.  This procedure is Dr. T.'s Baby, he invented this procedure.  Had I had the conventional Stim procedure:  Whereas they place the leads down your spine, with the battery pack somewhere down yonder, I believe I would be Pain Free today!  But, I got sold down the river, and listened to that inept Dr. T. I stand accused of being Desperate.  Wanting a LIFE sans any/all Pain.  My mistake, and now I have to live with it until I can find a reputable Surgeon to Remove what Dr. T. surgically implanted.

 

 

 

 

 

PLEASE READ BELOW:

 

Addendum:

I DO understand WHY our insurance company disallowed my surgery:  It is NOT recognized by them or the FDA.  This is a procedure that Dr. T. invented.  I am living proof that this type of Stim doesn't work!  I am SO sorry we fought them, and didn't try for another Pain Doctor - Qualified who's done many procedures via the stomach, back, etc.

 

 

 

MAJOR MISTAKE ~ FORESIGHT

 

I had my surgery for the "Occipital Stimulator Electrode Placement - Permanent."

 

NEW DEVELOPMENTS:

SOLD DOWN THE RIVER WITHOUT A PADDLE!

 

 

I had my Surgery on July 21st, 2009

 

I thought that right after the surgery, I'd be completely Pain-Free - as No ONE explained otherwise?  

No one ever explained the complete "Story, Process To Me."  I feel that since I was/am the one suffering, and going through the surgery, that they'd at least explain everything?  Well, now I'm still in pain. Would you believe that his policy is that "He Will NOT Speak With His Patients Over the Telephone, nor Will He Return Phone Calls?"  I cannot believe this?!  Please tell me I'm not going nuts!  I've NEVER had any doctor who wouldn't call back their patients, especially a Pain Doctor?

 

I am NOT pain free, and must see the Neuro Programmers every 3 weeks until the Pain is gone - If Ever?  I refuse to see them, and I am going to a NEW Pain Doctor now.  Thus, I will no longer need/want Dr.T.

I will be having my neuro stim = back of my head, leads/wires running down the side of my neck, connecting to the battery in my chest - Removed a.s.a.p.  I do not know if I will have the Surgeon who did this surgery remove it; I think I would feel much more comfortable having another Surgeon remove what I have, if I can find one that is.

 

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About My New Pain Doctor:

 

 

Main Site: http://www.ct-neurosurg.com/index.htm

 

http://www.ct-neurosurg.com/ourdoctors.htm

 

doctor's oathDr. David Glassman


Dr. Glassman is a graduate of the Sackler School of Medicine, New York, NY-Tel Aviv, Israel. He did his residency training at Yale University, Department of Anesthesiology as well as a Pain Management Fellowship. He is a licensed M.D. in Connecticut, New York, and New Jersey.
Dr. Glassman is Board Certified by the American Board of Anesthesiologists. Dr. Glassman is a specialist in Pain Management.

 

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About The Practice:

 

Connecticut Neurosurgery, PC began as Neurosurgical Associates of New Haven in 1971 with Dr. Lycurgus Davey, Dr. Alvin Greenberg, Dr Franklin Robinson and Dr. Isaac Goodrich. Connecticut Neurosurgery has evolved into an integrated multi-specialty neuroscience center presenting a full spectrum of care across the continuum of adult neurosurgery, physical rehabilitation and medicine and pain management. It now consists of seven physicians including five operating Neurosurgeons: Drs. Thomas J. Arkins, Gary M. Bloomgarden, Isaac Goodrich, James K. Sabshin and Patrick Tomak, Pain Management: Dr. David Glassman and Physician Medicine and Rehabilitation: Dr. Martin Hasenfeld. 

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Our practice provides excellence in neurosurgical care. We offer responsive, caring service; state-of-the-art technical innovations; and many years of in-depth experience. All the members of our Group have achieved considerable expertise in specific subspecialties within neurosurgery, which include cerebrovascular; neuro-oncology; stereotactic;trauma care; and spinal services. 
Above all, the emphasis of our practice continues to be patient-focused: consistently providing caring, competent clinical neurosurgery. Committed to continued advanced medical education, our physicians stay current in technical advances in medicine and neurosurgery, so we can deliver the most advanced care to our patients.

 

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I'll Keep You Posted - Informed!

Wish Me Luck, I'll Need It!

 



 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

  

 

 

 

 

 

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